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Welcome to L-W-O Community

Welcome to the L-W-O Community website! My name is Gaynor Leech, and I have been living with lymphoedema since 2011. Our mission is to provide you with valuable insights into what it is like to navigate life with this condition. On this website, you will find non-medical advice, support, and recommendations.

 

If necessary, L-W-O will direct you to sources or organisations that you may find valuable via hyperlinks; for a list of trustworthy organisations, please see our signposting page.

Since its founding in 2013, the L-W-O Community has grown to a community of 4,500 people. We provide non-medical information and support for those who have primary lymphoedema, secondary lymphoedema, or a lymphatic malformation. Lymphoedema can be managed and treated, however, the NHS does not always provide supported self-care for those of us who live with this condition.

Our website will demonstrate how you can enhance your daily activities and provide the justification and the "why" so that you can manage your lymphoedema. We encourage you to let your personality shine through, not your lymphoedema. 

Blog Posts

It's all about Community

It's all about Community
Speech bubbles showing people in conversation
L-W-O Community promotes Patient Empowerment and Community Engagement

 

The goal of L-W-O Community is to support our members' decision-making. We support community involvement and patient empowerment.

 

We could create fact sheets. This website contains a wealth of information based on my own experience as well as the experiences of members of the  L-W-O Community support group.

 

We use online posters and video presentations to increase community participation, inform people, and promote awareness of lymphoedema.

Below some of the Topics we cover

Skin care products
Arm wearing ompression sleeve
Female dancers with raised arms showin that dance movement helps keep lymph flowing.

Skincare

Compression

Movement

Image shows laptop, person typing a blog

Blog

Signpost to show when we don't have the answers we refer to other organisations

Signposting

Home office Gaynor


L-W-O Community is here for you; come join our welcoming Facebook support group and chat with members who can relate to you. Come join us here.
 

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According to estimates, 450,000 people in the UK are now receiving treatment for lymphoedema (Source British Lymphology Society).

For years, myths about lymphoedema have persisted, but our mission at L-W-O is to dispel them. We empower you with a holistic self-management approach, enabling you to make informed decisions tailored to your unique needs.

Check out the BLS Myth Buster here...

Look out for #MythBuster on each webpage

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If you find the support and information on the    L-W-O Community website useful, please consider supporting us by taking out a yearly subscription. Your contribution helps maintain this valuable resource for those living with lymphoedema or lymphatic malformations. 

You will find more options on our yearly subscriptions here...

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